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  • Writer's pictureJill Matthews

Cure Starts Now Foundation

After 5-year-old Elena Desserich was diagnosed with an inoperable kind of cancer, she managed to spread a message of hope and healing.

Elena knew that every coming day would be a gift, not to be wasted, so she created a to-do list of sorts -- swim with dolphins, drives a car, and more.

When her cancer progressed, and she could no longer speak, she turned to drawing and painting, her kindergarten passions, to communicate.

The talented artist fulfilled her lifelong dream when one of her drawings was hung next to her favorite painter, Pablo Picasso, at the Cincinnati Art Museum. The painting titled "I Love You" captured her giving spirit.

"The picture is made for everybody else, and so she called it, 'I Love You.' Very simple, but it's Elena," her dad, Keith Desserich, said.

Elena, who died in August 2007, also left behind "The Kindergarten Survival Guide" for her younger sister Grace.

She gave her dad a last dance.

"We had our dance, and that will always be the last and probably the best memory I'll ever have with her was being able to have that dance," Keith Desserich said. "There were lots of things that she wanted to do that last day, and I think she knew. We lost her two days later."

During her nine-month battle with cancer, Elena was planning an even more excellent gift for her family. She hid notes around the house, hundreds tucked in every corner to be discovered after she was gone.

"We were moving some boxes around one day, and in between some of the books, a note fell out," her mother, Brooke Desserich, said. "Each time I would read one of those notes, it was like a little hug from her."

The Wyoming parents kept an online journal throughout the ordeal to update family members on Elena's progress. They were surprised to learn that thousands of people around the country were reading it for daily inspiration.

"Everybody was reading the journal and going, 'This taught me to be a better parent. It taught me to spend time with my children and value being a mom and dad,'" Keith Desserich said.

Her parents have now compiled the daily journals in a book titled "Notes Left Behind" and created a foundation to raise money to find a cure for pediatric brain cancer -- all of it inspired by the simple notes a little girl left behind.

And the Desserich family has set up a foundation to find a cure for pediatric brain cancer. Visit the Desserich family's Web site

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